If you were reading the Washington Post today and stumbled across the front page of the Health section then you saw Professor Arturo Porzecanski from S.I.S.. Professor Porzwcanski was featured because of a rare disease he suffers from and the work he done speaking up for the little known disease called Systemic Capillary Leak Syndrome.
The Post writes:
Recently he testified before experts at the National Institutes of Health, explaining his condition and the need for more research on SCLS.
He calls it his “big day.”
“I wanted so badly to live long enough until the day NIH scientists had been exposed to SCLS and had begun to study it, and now I’ve achieved it,” he said.
Professor Porzwcanski, well done sir. On top of an important duty to your medical community, your work is just plain moving and a great motivator to others in different situations.




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